Ending diagnostic delay. Confronting medical dismissal. Defending your right to choose your own path - in health and in birth.
I'm a queer, neurodivergent parent, patient advocate, childbirth educator, and doula specializing in disability-informed, trauma-aware, and inclusive support. Drawing from both professional training and lived experience with Ehlers-Danlos Syndrome, Dysautonomia, MCAS, and Long COVID, I help individuals navigate complex healthcare systems and consult with doulas and care professionals who want to better support diverse clients across body sizes, genders, abilities, and family structures. My goal is simple: helping people feel informed, respected, and empowered in their care and decision-making.
FREE! 4th edition PDF Guide for Infant Feeding Tips and Support for HSD/EDS Parents.
Free for a limited time, new booklet form will be available soon! This guide is created by people with EDS for people with EDS. This guide encompasses such topics as skin fragility issues, joint pain, neurodivergence, POTS, GI issues and more.
What do my Patient Advocate and Doula Consulatation Services have in common?
Tired of being gaslighted at medical appointments because you don’t fit into a standard diagnosis?
Feel like the odd person out with your ideas about how you want your birth to go?
Throughout my life, access to knowledgeable, affirming support has been transformative. From childbirth education and doula care to disability community and patient advocacy, I experienced firsthand how the right support can help people navigate complex decisions, access better care, and feel more confident in their choices. Those experiences inspired my work today.
I am committed to helping individuals strengthen their self-advocacy skills and partnering with doulas and other health professionals who want to provide more inclusive, accessible, and client-centered support for people of all body sizes, genders, abilities, and family structures.
Let’s join together to help end diagnostic delay, confront medical dismissal and defend the right to choose your own path - in health and in birth.
Hello Fellow Zebras!
Get the first installment of the UPDATED EDS Support for Pregnancy, Birth, Parenting and Infant Feeding Series- OUT NOW!
When you sign up for the news and updates about how to support your EDS self during pregnancy, birth and parenthood the 6 page guide Infant Feeding Tips and Support for HSD/EDS Parents is published now and available for free!
Ziah has participated in over 150 hours of Ehlers-Danlos Society’s ECHO programs and over 30 hours in conference presentations. also the only Doula listed in the Professionals Directory on the Ehlers-Danlos Society Website.
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“I would classify the things I learned in this class as “things I didn’t know I didn’t know, but am so glad that I do now.” ~Hillary S. 2nd time parent
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“I am so grateful I had Ziah during my pregnancy and labor - she presented so much great information and resources to inform the decisions I was going to make about my birthing plan. Ziah was amazing support during the birth and I couldn’t have imagined it without her! She will be your best advocate and create so much comfort in your space.”
— Chelsea C.